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Table 2 Demographics of family members involved in qualitative data collection in phases I and II

From: Development and evaluation of the feasibility and effects on staff, patients, and families of a new tool, the Psychosocial Assessment and Communication Evaluation (PACE), to improve communication and palliative care in intensive care and during clinical uncertainty

 

Phase 1

Phase 2

Total cases, n patients (caregivers)*

11 (13)

10 (11)

Age of patients (median) years

23, 27, 31, 45, 49, 53, 54, 59, 71, 79, 87 (53)

40, 43,52, 57, 59, 59, 62, 63, 80,83 (59)

Gender of patients

4 women, 7 men

4 female, 6 male

Gender of family members

6 women, 7 men

9 female, 2 male

Diagnosis of patients

Neurological injury (n =4); infection (pneumonia, malaria) (n = 2); hypoxic brain injury (n = 2); malignancy (n = 2); COPD plus pneumonia (n=1)

COPD plus pneumonia (n = 2); subarachnoid hemorrhage (n = 2); C4 level lesion (n = 1); gastro-intestinal bleed (n = 1); hypoxic brain injury (n = 1); cardiac arrest secondary to PE (n = 1); acute subdural hematoma (n = 1); dissecting aortic aneurysm (n=1).

Age of interviewee (median) years

28,30,30, 35, 36, 44, 47, 53 ,53, 53, 56, 59,67 (47)

30, 36, 40, 43, 46, 48, 50, 50, 54, 62, 77 (48)

Relative travel time to hospital

<30 minutes (n = 4); 30 minutes to <1 hour (n = 6); ≥1 hour (n = 3);

<30 minutes (n = 2); 30 minutes to <1 hour (n = 3); ≥1 hour (n = 6 (one of these was staying locally within 30 minutes travel time));

Ethnicity of family members

White British (n = 9); Mixed Caribbean (n = 2); Asian (n = 1); Afro-Caribbean (n = 1);

White British (n = 11)

Religion of family members

No religion (n = 5); Christian (n = 6); Muslim (n = 2);

No religion (n = 4); Christian (n = 7)

Occupation of family members

Nurse (n = 2); self-employed (n = 1); civil servant (n=1); clinic supervisor (n = 1); degree-level qualification (n = 1); care manager (n = 1); lorry driver (n = 1); carer (n = 1); masters-level qualification (n = 1); technical instructor (n = 1); manager higher education (n=1); retired executive (n=1)

No paid employment (n = 4); secretary (n = 1); waitress (n = 1); carer (n = 1); security guard (n = 1); actuary (n = 1); teaching assistant (n = 1); sales consultant (n = 1)

Relationship to patient

Partner (n = 3); child (n = 6); sibling (n = 1); parent (n = 3)

Partner (n = 5); child (n = 4); sibling (n = 2)

  1. * note in each group for one patient two family members wanted to be interviewed.
  2. Abbreviations: COPD chronic obstructive pulmonary disease, PE pulmonary embolism.