Table 1 Demographic and clinical characteristics of patients in the validation study (n = 610) and retest of the Treatment Burden Questionnaire (TBQ) for an English-speaking population (n = 282)
Characteristic | Validation study(n = 610) | Retest(n = 282) |
|---|---|---|
Age, yearsa | 51.5 ± 12.4 | 52.3 ± 12.3 |
Female sex, n (%) | 451 (76.7) | 215 (76.2) |
Country of residence, n (%) | Â | Â |
  USA | 351 (57.5) | 172 (61.0) |
  Canada | 51 (8.4) | 20 (7.1) |
  UK | 53 (8.7) | 26 (9.2) |
  Australia/New Zealand | 21 (3.4) | 10 (3.5) |
  Other/missing | 134 (22.0) | 54 (19.1) |
Educational level, n(%) | Â | Â |
  Less than High School | 24 (3.9) | 10 (3.5) |
  High school graduate or General Education Diploma | 99 (16.2) | 55 (19.5) |
  Some College | 220 (36.1) | 95 (33.7) |
  Bachelor’s degree | 134 (22.0) | 60 (21.3) |
  Graduate degree | 124 (20.3) | 58 (20.6) |
Treatments, n | Â | Â |
Tablets and pills/day | 8.5 ± 6.4 | 8.6 ± 6.7 |
Injections/week | 1.4 ± 4.6 | 1.5 ± 4.1 |
Drug administrations/day | 3.0 ± 2.0 | 2.9 ± 1.9 |
Different doctors the patient sees | 3.0 ± 2.3 | 2.9 ± 1.5 |
Appointments/month | 2.9 ± 2.9 | 2.7 ± 2.7 |
Hospitalizations/year | 0.5 ± 1.7 | 0.5 ± 1.1 |
Presence of an informal caregiver, n (%) | 280 (45.9) | 125 (44.3) |
Most common location for medical consultations, n (%) | Â | Â |
  Public hospital | 63 (10.3) | 30 (10.6) |
  Private hospital | 20 (3.3) | 4 (1.4) |
  General practice clinic | 291 (47.7) | 135 (47.9) |
  Specialist clinic | 224 (36.7) | 106 (37.6) |
Duration of oldest chronic condition, years, n (%) | Â | Â |
 <5 | 182 (29.8) | 75 (26.6) |
  5 to 10 | 217 (35.6) | 108 (38.3) |
  > 10 | 205 (33.6) | 96 (34.0) |
Chronic conditions, n | 2.9 ± 1.9 | 2.9 ± 1.9 |
Conditions, n (%)b | Â | Â |
  Neurologic disease | 277 (45.4) | 134 (47.5) |
  Psychiatric disease | 250 (41.0) | 107 (37.9) |
  Rheumatologic disease | 203 (33.3) | 89 (31.6) |
  High blood pressure | 156 (25.6) | 62 (22.0) |
  Gastrointestinal disease | 129 (21.1) | 67 (23.7) |
  Endocrine disorder (other than diabetes) | 121 (19.8) | 53 (18.8) |
  Lung disease | 93 (15.2) | 45 (16.0) |
  Vision problems | 83 (13.6) | 35 (12.4) |
  Fibromyalgia | 79 (12.9) | 30 (10.6) |
  Skin disease | 71 (11.6) | 33 (11.7) |
  Hearing problem | 49 (8.0) | 27 (9.6) |
  Diabetes | 45 (7.4) | 19 (6.7) |
  Kidney disease | 38 (6.2) | 12 (4.2) |
  Heart disease | 34 (5.6) | 14 (5.0) |
  Cancer or malignant blood disease | 31 (5.1) | 19 (6.7) |
  Infectious disease | 19 (3.1) | 10 (3.5) |
  Stroke or cerebrovascular disease | 17 (2.8) | 8 (2.8) |