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Table 1 Demographic and clinical characteristics of patients in the validation study (n = 610) and retest of the Treatment Burden Questionnaire (TBQ) for an English-speaking population (n = 282)

From: Adaptation and validation of the Treatment Burden Questionnaire (TBQ) in English using an internet platform

Characteristic Validation study(n = 610) Retest(n = 282)
Age, yearsa 51.5 ± 12.4 52.3 ± 12.3
Female sex, n (%) 451 (76.7) 215 (76.2)
Country of residence, n (%)   
  USA 351 (57.5) 172 (61.0)
  Canada 51 (8.4) 20 (7.1)
  UK 53 (8.7) 26 (9.2)
  Australia/New Zealand 21 (3.4) 10 (3.5)
  Other/missing 134 (22.0) 54 (19.1)
Educational level, n(%)   
  Less than High School 24 (3.9) 10 (3.5)
  High school graduate or General Education Diploma 99 (16.2) 55 (19.5)
  Some College 220 (36.1) 95 (33.7)
  Bachelor’s degree 134 (22.0) 60 (21.3)
  Graduate degree 124 (20.3) 58 (20.6)
Treatments, n   
Tablets and pills/day 8.5 ± 6.4 8.6 ± 6.7
Injections/week 1.4 ± 4.6 1.5 ± 4.1
Drug administrations/day 3.0 ± 2.0 2.9 ± 1.9
Different doctors the patient sees 3.0 ± 2.3 2.9 ± 1.5
Appointments/month 2.9 ± 2.9 2.7 ± 2.7
Hospitalizations/year 0.5 ± 1.7 0.5 ± 1.1
Presence of an informal caregiver, n (%) 280 (45.9) 125 (44.3)
Most common location for medical consultations, n (%)   
  Public hospital 63 (10.3) 30 (10.6)
  Private hospital 20 (3.3) 4 (1.4)
  General practice clinic 291 (47.7) 135 (47.9)
  Specialist clinic 224 (36.7) 106 (37.6)
Duration of oldest chronic condition, years, n (%)   
 <5 182 (29.8) 75 (26.6)
  5 to 10 217 (35.6) 108 (38.3)
  > 10 205 (33.6) 96 (34.0)
Chronic conditions, n 2.9 ± 1.9 2.9 ± 1.9
Conditions, n (%)b   
  Neurologic disease 277 (45.4) 134 (47.5)
  Psychiatric disease 250 (41.0) 107 (37.9)
  Rheumatologic disease 203 (33.3) 89 (31.6)
  High blood pressure 156 (25.6) 62 (22.0)
  Gastrointestinal disease 129 (21.1) 67 (23.7)
  Endocrine disorder (other than diabetes) 121 (19.8) 53 (18.8)
  Lung disease 93 (15.2) 45 (16.0)
  Vision problems 83 (13.6) 35 (12.4)
  Fibromyalgia 79 (12.9) 30 (10.6)
  Skin disease 71 (11.6) 33 (11.7)
  Hearing problem 49 (8.0) 27 (9.6)
  Diabetes 45 (7.4) 19 (6.7)
  Kidney disease 38 (6.2) 12 (4.2)
  Heart disease 34 (5.6) 14 (5.0)
  Cancer or malignant blood disease 31 (5.1) 19 (6.7)
  Infectious disease 19 (3.1) 10 (3.5)
  Stroke or cerebrovascular disease 17 (2.8) 8 (2.8)
  1. aData are mean ± SD unless otherwise indicated.
  2. bAny given patient can have multiple conditions.