From: Pain care for patients with epidermolysis bullosa: best care practice guidelines
1. | Availability of resources (for example, medications and equipment) |
2. | Legal and social restrictions on the use of various medications and therapies. |
3. | Limited and uneven distribution of knowledge and expertise |
4. | International dissemination of guidelines and EB-related information to local care providers and families (includes translation and access to electronic and print media) |