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Table 1 Characteristics of participants (n = 1,053)

From: Taxonomy of the burden of treatment: a multi-country web-based qualitative study of patients with chronic conditions

Characteristics Total Participants from French-speaking countries Participants from English-speaking countries Participants from Spanish-speaking countries
(n = 1,053) (n = 693) (n = 315) (n = 45)
Age (yr), Median (IQR) 47 (35–57) 46 (35–56) 49 (36–59) 45 (37–55)
Female sex, n (%) 768 (73) 474 (68) 262 (83) 30 (67)
Marital status, n (%)     
 Married or civil union 544 (52) 352 (51) 170 (54) 22 (49)
 Live in partner 129 (12) 98 (14) 28 (9.0) 3 (6.7)
 Single 252 (24) 166 (24) 70 (22) 16 (36)
 Divorced 107 (10) 63 (9.0) 42 (14) 2 (4.4)
 Widowed 21 (2.0) 14 (2.0) 5 (1.6) 2 (4.4)
Highest educational level, n (%)     
 Primary/middle school 30 (2.8) 23 (3.3) 6 (1.9) 1 (2.2)
 High school 305 (29) 249 (36) 44 (14) 12 (27)
 College 718 (68) 421 (61) 265 (84) 32 (71)
Place where participants go most frequently for consultations, n (%)     
 Public hospital 465 (44) 378 (54) 65 (21) 22 (49)
 Private hospital 83 (7.9) 61 (8.8) 17 (5.4) 5 (11)
 General practitioner’s clinic 295 (28) 163 (24) 124 (39) 7 (16)
 Specialist clinic 210 (20) 91 (13) 109 (35) 11 (24)
Presence of informal caregiver a, n (%) 478 (45) 329 (47) 126 (40) 23 (51)
No. of medical appointments/month, Median (IQR) 4 (2–8) 5 (3–9) 3 (2–5) 3 (2–7)
No. of different physicians the participant regularly sees, n (%) 3 (2–4) 3 (2–4) 3 (2–4) 3 (2–4)
No. of tablets/day, Median (IQR) 8 (4–12) 7 (4–12) 8 (4–15) 4.5 (2–9.5)
No. of injections/day, Median (IQR) 0 (0–1) 0 (0–1) 0 (0–1) 0 (0–1)
Time needed to organize medications per week (minutes), Median (IQR) 30 (14–70) 21 (10–45) 35 (15–90) 35 (10–105)
Time needed for self-monitoring per week (minutes), Median (IQR) 8.5 (0–20) 5 (0–15) 10 (0–35) 17.5 (5–60)
No. of conditions, Median (IQR) 2 (1–3) 2 (1–3) 2 (1–4) 2 (1–3)
Participants with >2 chronic conditions, n (%) 662 (63) 409 (59) 224 (71) 29 (64)
Main chronic conditions b     
 Diabetes 168 (16) 98 (14) 53 (17) 17 (38)
 Other endocrine disorders 197 (19) 106 (15) 81 (26) 10 (22)
 Lung diseases 142 (13) 52 (7.5) 84 (27) 6 (13)
 High blood pressure or dyslipidemia 303 (29) 207 (30) 87 (28) 9 (20)
 Heart diseases 125 (12) 57 (8.2) 64 (20) 4 (8.9)
 Kidney or urological diseases 304 (29) 285 (41) 18 (5.7) 1 (2.2)
 Gastrointestinal diseases 138 (13) 66 (9.5) 66 (21) 6 (13)
 Stroke or cerebrovascular disease 35 (3.3) 20 (2.9) 15 (4.8) 0 (0)
 Neurologic diseases 146 (14) 89 (13) 49 (16) 8 (18)
 Rheumatologic disease 344 (33) 209 (30) 127 (40) 8 (18)
 Cancer or malignant blood diseases 84 (8.0) 59 (8.5) 21 (6.7) 4 (8.9)
 Psychiatric disease 128 (13) 56 (8.1) 60 (19) 12 (27)
 Vision problems 79 (7.5) 46 (6.6) 29 (9.2) 4 (8.9)
 Otorhinolaryngological problems 64 (6.1) 42 (6.1) 21 (6.7) 1 (2.2)
 Skin diseases 89 (8.4) 58 (8.4) 21 (6.7) 10 (22)
 Infectious disease 12 (1.0) 8 (1.1) 3 (0.9) 1 (2.2)
 Systemic conditions 108 (10) 70 (10) 38 (12) 0 (0)
 Other c 50 (4.7) 26 (3.7) 20 (6.3) 4 (8.9)
  1. a Informal caregivers were family members or friends who helped the participant with healthcare tasks without payment for the care; b A patient can have multiple chronic conditions; c Other included non-malignant hematological conditions, thrombosis, obstetrical conditions, genetic disorders