Table 1 Characteristics of the deceased patients and respondents (bereaved carer) (unit: %, mean (s.d.))
London (N = 245) | Ireland (N = 282) | USA (N = 240) | All (N = 767) | |
|---|---|---|---|---|
Bereaved carer | ||||
Women (n = 749) | 72.6% | 67.9% | 70.9% | 70.4% |
Age (n = 738) | 61.6(12.6) | 59.2(13.7) | 60.9(14.1) | 60.5(13.5) |
Ethnicity (= 1 if white) (n = 725) | 85.2% | 100.0% | 59.3% | 82.5% |
Employment status (n = 730) | ||||
Employed and paid | 35.3% | 43.6% | 52.4% | 43.7% |
Employed and unpaid | 8.5% | 13.6% | 8.7% | 10.4% |
Unemployed | 8.9% | 9.1% | 6.5% | 8.2% |
Retired | 47.2% | 33.7% | 32.5% | 37.7% |
Relationship (n = 742) | ||||
Wife or female partner | 22.1% | 20.5% | 27.4% | 22.4% |
Husband or male partner | 12.1% | 11.9% | 14.1% | 12.3% |
Daughter | 37.5% | 38.4% | 31.2% | 34.7% |
Son | 9.6% | 16.0% | 10.3% | 11.7% |
Female other | 8.8% | 7.1% | 8.6% | 7.8% |
Male other | 2.5% | 4.5% | 2.6% | 3.1% |
Others | 7.5% | 1.5% | 6.0% | 4.7% |
Household income (n = 750) | ||||
Living comfortably | 31.0% | 19.2% | 45.4% | 31.2% |
Doing alright | 37.6% | 44.3% | 32.5% | 38.5% |
Just about getting by | 9.8% | 16.3% | 8.8% | 11.9% |
Finding it quite difficult | 9.4 | 10.6% | 3.8% | 8.1% |
Finding it very difficult | 2.5% | 0.7% | 0.8% | 1.3% |
Do not know | 2.5% | 2.5% | 4.2% | 3.0% |
Religious belief (= 1 if yes) (N = 729) | 82.6% | 92.6% | 79.9% | 85.5% |
ZARIT | ||||
Burden1) (N = 734) | 25.1(8.8) | 23.6(9.4) | 24.6(8.7) | 24.4(9.0) |
Positive aspects of caregiving2) (N = 729) | 29.2(6.9) | 30.0(7.4) | 30.7(6.7) | 30.0(7.1) |
TRIG | ||||
Past behaviour (N = 734) | 20.5(8.9) | 21.7(8.3) | 20.1(7.4) | 20.8(8.3) |
Subsequent feeling (N = 738) 3) | 43.0(13.8) | 44.7(13.1) | 41.1(12.0) | 43.0(13.1) |
Patient | ||||
Women | 54.3% | 51.4% | 52.9% | 52.8% |
Age (years) (n = 766) | 79.7(8.3) | 80.8(8.2) | 78.5(9.1) | 79.7(8.6) |
65–69 | 13.9% | 12.8% | 21.7% | 15.9% |
70–79 | 36.3% | 29.9% | 32.9% | 32.9% |
80–89 | 36.3% | 41.6% | 33.3% | 37.3% |
90–102 | 13.5% | 15.7% | 12.1% | 13.8% |
Diagnosis (n = 763) | ||||
Lung and respiratory cancer | 13.5% | 11.4% | 7.9% | 11.0% |
Breast cancer | 2.0% | 3.9% | 2.9% | 3.0% |
Genitourinary cancer | 12.7% | 7.5% | 5.8% | 8.6% |
Lymphatic cancer | 10.2% | 5.7% | 5.8% | 7.2% |
Digestive cancer | 12.2% | 10.3% | 12.1% | 11.5% |
Ill-defined cancer | 6.1% | 3.9% | 0% | 3.4% |
Other cancer | 2.9% | 5.0% | 4.2% | 4.0% |
Non-cancer respiratory | 7.4% | 16.0% | 9.2% | 11.1% |
Non-cancer circulatory | 14.7% | 16.7% | 26.3% | 19.0% |
Non-cancer CNS4) | 10.2% | 7.1% | 2.9% | 6.8% |
Renal failure | 1.2% | 3.2% | 6.7% | 3.7% |
Other non-cancer4) | 5.7% | 9.2% | 16.3% | 10.3% |
Primary carer (= 1 if available) (n = 731) | 87.6% | 87.1% | 92.2% | 88.8% |
Living with (= 1 if yes) (n = 746) | 61.4% | 67.9% | 75.2% | 68.1% |
Religious belief (= 1 if religious) | 88.1% | 98.5% | 84.6% | 90.8% |
Number of carers (n = 731) | 2.5(1.8) | 3.0(2.0) | 2.6(1.7) | 2.7(1.9) |
Health and social care costs (USD) | 15,756(15,036) | 29,210(24,231) | 37,327(37,234) | 27,452(28,203) |