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Table 2 Number (percentage) of patients in the last 3 months of life who received informal care (IC) support according to main categories in the CSRI questionnaire, and the mean (SD) hours provided per week provided by ICrs for each of these activities

From: Associations between informal care costs, care quality, carer rewards, burden and subsequent grief: the international, access, rights and empowerment mortality follow-back study of the last 3 months of life (IARE I study)

 

England (N = 245)

Ireland (N = 282)

USA (N = 240)

n

Mean

s.d.

n

Mean

s.d.

n

Mean

s.d.

Personal care

141

57.6%

19.12

18.62

163

57.8%

21.02

18.64

131

54.6%

18.59

17.65

Medical procedure

135

55.1%

17.02

18.03

154

54.6%

18.49

18.77

135

56.3%

15.05

16.61

Appointments

170

69.4%

7.57

10.54

190

67.4%

7.30

10.47

164

68.3%

9.82

11.75

Household task

182

74.3%

21.24

17.55

190

67.4%

20.88

17.63

168

70.0%

16.72

15.52

On call

199

81.2%

76.00

46.12

221

78.4%

72.83

46.63

187

77.9%

66.23

48.48

Time with patient

201

82.0%

54.88

47.12

251

89.0%

53.02

46.38

206

85.8%

51.94

45.75

  1. Notes: The questions used in the questionnaires were as follows: Did you and other friends or family help with (1) personal care? (e.g. washing, dressing), (2) medical procedures? (e.g. taking medicines), (3) going to appointments or treatments?, (4) household tasks? (e.g. shopping, cooking), (5) time spent on call (i.e. being with her/him if needed) and (6) time spent with her/him (e.g. visiting, doing things together)