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Table 2 Number (percentage) of patients in the last 3 months of life who received informal care (IC) support according to main categories in the CSRI questionnaire, and the mean (SD) hours provided per week provided by ICrs for each of these activities

From: Associations between informal care costs, care quality, carer rewards, burden and subsequent grief: the international, access, rights and empowerment mortality follow-back study of the last 3 months of life (IARE I study)

  England (N = 245) Ireland (N = 282) USA (N = 240)
n Mean s.d. n Mean s.d. n Mean s.d.
Personal care 141 57.6% 19.12 18.62 163 57.8% 21.02 18.64 131 54.6% 18.59 17.65
Medical procedure 135 55.1% 17.02 18.03 154 54.6% 18.49 18.77 135 56.3% 15.05 16.61
Appointments 170 69.4% 7.57 10.54 190 67.4% 7.30 10.47 164 68.3% 9.82 11.75
Household task 182 74.3% 21.24 17.55 190 67.4% 20.88 17.63 168 70.0% 16.72 15.52
On call 199 81.2% 76.00 46.12 221 78.4% 72.83 46.63 187 77.9% 66.23 48.48
Time with patient 201 82.0% 54.88 47.12 251 89.0% 53.02 46.38 206 85.8% 51.94 45.75
  1. Notes: The questions used in the questionnaires were as follows: Did you and other friends or family help with (1) personal care? (e.g. washing, dressing), (2) medical procedures? (e.g. taking medicines), (3) going to appointments or treatments?, (4) household tasks? (e.g. shopping, cooking), (5) time spent on call (i.e. being with her/him if needed) and (6) time spent with her/him (e.g. visiting, doing things together)