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Table 2 Outcomes identified by delirium survivor and family interview participants

From: A core outcome set for studies evaluating interventions to prevent and/or treat delirium for adults requiring an acute care hospital admission: an international key stakeholder informed consensus study

Outcome (N = 18 interview participants) n (%)
Emotional distress (i.e., fear and anxiety related to delirium symptoms) 9 (50)
Delirium severity (i.e., severity of hallucinations, paranoid thoughts, delusions, disorientation) 9 (50)
Ability to get back to previous cognitive abilities/long term cognitive outcomes 8 (44)
Agitation—occurrence and durationa 8 (44)
Safety—falls and other injuries, pulling out lines 8 (44)
Ability to live alone independently/manage activities of daily living 7 (39)
Being able to mobilize/physical functioning after discharge 7 (39)
Risk factors for delirium including environmental factorsb 6 (33)
Delirium duration 5 (28)
Repeated infection as a risk factor for deliriumb 5 (28)
Delirium reoccurrence and its risk factorsb 5 (28)
Sleep quantity and quality 5 (28)
Quality of life/recovery (physical and psychological) 5 (28)
Acute stress and post-traumatic stress disorder 4 (22)
Impact of delirium on family (stress, emotional wellbeing, burden)a 4 (22)
Length of stay 3 (17)
Mortality/survival 3 (17)
Use of chemical restraint/psychotropic drugs 3 (17)
Pain 3 (17)
Discharge disposition including ability to be discharged home 3 (17)
Time to/frequency of mobilization 3 (17)
Use of physical restraint 2 (11)
Ability to return to previous lifestyle/workc 2 (11)
Time to delirium diagnosis 2 (11)
Depression 1 (6)
Sedative dose 1 (6)
Delirium incidence 1 (6)
Delirium resolution 1 (6)
Subsyndromal deliriumc 1 (6)
Hospital readmission 1 (6)
  1. aIdentified in systematic review but reported in < 5% of studies
  2. bConsidered as not an outcome during adjudication processes
  3. cNot identified in systematic review