Table 5 Association of participant characteristics and performance of risk management behavior(s)a post-disclosure in participants identified via MyCode
Variable | Participants identified via MyCode (n=65) | Post-disclosure risk management behavior (n=36) | No post-disclosure risk management behavior (n=29) | Odds ratio (95% confidence interval), p-value |
|---|---|---|---|---|
Female sex | 43/65 (66.2%) | 27/36 (75%) | 16/29 (55.2%) | 0.71 (0.52–2.01), 0.09 |
Median age at result return — years (IQR) | 56.2 (30.2) | 57.2 (29.0) | 55.4 (28.9) | 1.3 (0.18–8.15), 0.68 |
Median time since results — years (IQR) | 0.7 (2.2) | 1.1 (2.2) | 0.7 (1.4) | 6.2 (0.96–40.1), 0.38 |
Personal history | 5/65 (7.7%) | 4/36 (11.1%) | 1/29 (3.4%) | 1.76 (0.31–9.86), 0.25 |
Self-reported family history | 16/65 (24.6%) | 12/36 (33.3%) | 4/29 (13.7%) | 3.83 (0.97–15.2), 0.038 |
Genetics follow-up | 35/65 (53.8%) | 29/36 (80.6%) | 6/29 (20.7%) | 9.7 (3.02–30.9), <0.0001* |
Specialist follow-up | 27/65 (41.5%) | 26/36 (72.2%) | 1/29 (3.4%) | 50 (6.1–411.1), <0.0001* |
PCP follow-up | 20/65 (30.8%) | 15/36 (41.7%) | 5/29 (17.2%) | 5.9 (1.5–23.1), 0.0339 |