From: The development of a core outcome set for studies of pregnant women with multimorbidity
Characteristics | 1st Delphi, n | 2nd Delphi, n | 1st consensus meeting, n | 2nd consensus meeting, n |
---|---|---|---|---|
Total | 209 | 116 | 13 | 17 |
Stakeholders | ||||
 Service users: Women with multiple long-term conditions | 62 | 38 | 6 | 9 |
 Service users: Partner | 1 | 1 | - | - |
 Service providers: Health or social care professionals | 102 | 52 | 7 | 8 |
 Researchers | 44 | 25 | (5 health professionals have dual roles as researchers) | (8 health professionals have dual roles as researchers) |
Consensus meeting recruitment | ||||
 From focus group and Delphi surveys participants | - | - | 8 | 11 |
 From research team | - | - | 3 | 1 |
 From Patient and Public Involvement Advisory Group | - | - | 2 | 5 |
Geography | ||||
 Africa | 51 | 20 | 1 | 1 |
 Asia | 23 | 14 | - | - |
 Australia and New Zealand | 7 | 5 | - | - |
 Europe | 112 | 70 | 12 | 16 |
 Middle East | 3 | 1 | - | - |
 North America | 11 | 5 | - | - |
 South America | 1 | 1 | - | - |
 Prefer not to say | 1 | - | - | - |
Urban/rural | ||||
 Urban | 169 | 97 | 11 | 15 |
 Rural | 35 | 15 | 2 | 1 |
 Prefer not to say | 5 | 4 | - | 1 |
Ethnicity | ||||
 Asian | 40 | 26 | - | 1 |
 Black, Caribbean or African | 48 | 21 | 1 | 2 |
 Mixed or multiple ethnic groups | 3 | 1 | - | - |
 White | 110 | 66 | 11 | 13 |
 Other | 4 | - | - | - |
 Prefer not to say | 4 | 2 | 1 | 1 |
Age in years | ||||
 Median (interquartile range) | 36 (31 to 44) | 37 (32 to 47) | 42 (32 to 44) | 41 (34 to 46) |
 Range | 22 to 70 | 23 to 70 | 28 to 70 | 28 to 61 |
 Prefer not to say/missing | 4 | 3 | 1 | 1 |
Woman stakeholders | ||||
 Pregnant in the last 5 years | 54 | 33 | 3 | 3 |
 Planning a pregnancy | 8 | 5 | 1 | 1 |
 Patient and Public Involvement Advisory Group | - | - | 2 | 5 |
Number of health conditions (median, IQR) | 3 (2 to 4) | 3 (2 to 4) | 4 (2 to 6) | 3 (2 to 4) |
Number of health conditions (range) | 2 to 11 | 2 to 11 | 2 to 11 | 2 to 11 |
Health conditions | ||||
 Mental health conditions | 29 | 17 | 4 | 4 |
 Rheumatology/musculoskeletal | 21 | 13 | 4 | 3 |
 Gastroenterology | 16 | 6 | - | 1 |
 Endocrine | 15 | 10 | - | - |
 Respiratory | 13 | 8 | 1 | 1 |
 Neurology | 12 | 8 | 2 | 3 |
 Women’s health | 12 | 7 | - | 1 |
 Cardiovascular | 12 | 6 | 1 | - |
 Dermatology/allergies | 11 | 5 | - | 1 |
 Other | 5 | 3 | 1 | 2 |
 Neurodevelopmental | 5 | 2 | 1 | 2 |
 Haematology | 4 | 4 | 1 | 1 |
 Genetic | 4 | 3 | - | - |
Under-served characteristics (Includes addiction, asylum seeker, disabled, homeless/supported accommodation, LGBTQ+, migrant, victims of domestic abuse, other) | 18 | 14 | 5 | 8 |
Education | ||||
 Primary | 1 | 1 | - | - |
 Secondary | 10 | 7 | - | 1 |
 Tertiary | 46 | 27 | 6 | 7 |
 Vocational | 4 | 2 | - | 1 |
 Other | - | - | - | - |
 Prefer not to say | 1 | 1 | - | - |
Health or social care professional stakeholders | ||||
 Midwife/nurse/health visitor | 39 | 19 | 4 | 3 |
 Obstetrician/maternal and fetal medicine specialist | 19 | 9 | 1 | 1 |
 Obstetric physician/physician/anaesthetist | 15 | 10 | - | 1 |
 Family medicine/general practitioner | 9 | 5 | 1 | 1 |
 Paediatrician/neonatologist | 7 | 4 | 1 | 1 |
 Psychiatrist/perinatal mental health specialist/psychotherapist | 5 | 2 | - | 1 |
 Other | 5 | 1 | - | - |
 Not stated | 3 | 2 | - | - |
Researcher stakeholders’ area of research |  |  |  |  |
 Maternal and infant health/midwifery/obstetrics/women’s/reproductive health | 24 | 14 | 5 | 4 |
 Epidemiology/pharmacoepidemiology | 6 | - | - | - |
 Primary care/nursing | 3 | 3 | - | 1 |
 Medical specialties | 2 | 2 | - | 2 |
 Psychiatry/psychology | 2 | 2 | - | 1 |
 Not stated | 7 | 4 | - | - |