End-of-life care: the neglected core business of medicine. Lancet. 2012, 379: 1171-10.1016/S0140-6736(12)60490-5.
Department of Health: End of Life Care Strategy - Promoting High Quality Care for Adults at the End of Life. 2008, London: Department of Health
Google Scholar
Higginson IJ: It would be NICE to have more evidence?. Palliat Med. 2004, 18: 85-86. 10.1191/0269216304pm884ed.
Article
PubMed
Google Scholar
Kendall M, Harris F, Boyd K, Sheikh A, Murray SA, Brown D, Mallinson I, Kearney N, Worth A: Key challenges and ways forward in researching the “good death”: qualitative in-depth interview and focus group study. BMJ. 2007, 334: 521-10.1136/bmj.39097.582639.55.
Article
PubMed
PubMed Central
Google Scholar
Sleeman KE, Gomes B, Higginson IJ: Research into end-of-life cancer care–investment is needed. Lancet. 2012, 379: 519-10.1016/S0140-6736(12)60230-X.
Article
PubMed
Google Scholar
Shipman C, Gysels M, White P, Worth A, Murray SA, Barclay S, Forrest S, Shepherd J, Dale J, Dewar S, Peters M, White S, Richardson A, Lorenz K, Koffman J, Higginson IJ: Improving generalist end of life care: national consultation with practitioners, commissioners, academics, and service user groups. BMJ. 2008, 337: a1720-10.1136/bmj.a1720.
Article
PubMed
PubMed Central
Google Scholar
Lorenz KA, Lynn J, Dy SM, Shugarman LR, Wilkinson A, Mularski RA, Morton SC, Hughes RG, Hilton LK, Maglione M, Rhodes SL, Rolon C, Sun VC, Shekelle PG: Evidence for improving palliative care at the end of life: a systematic review. Ann Intern Med. 2008, 148: 147-159. 10.7326/0003-4819-148-2-200801150-00010.
Article
PubMed
Google Scholar
Chochinov HM, Kristjanson LJ, Breitbart W, McClement S, Hack TF, Hassard T, Harlos M: Effect of dignity therapy on distress and end-of-life experience in terminally ill patients: a randomised controlled trial. Lancet Oncol. 2011, 12: 753-762. 10.1016/S1470-2045(11)70153-X.
Article
PubMed
PubMed Central
Google Scholar
Gysels M, Higginson IJ: Improving Supportive and Palliative Care for Adults with Cancer: Research Evidence. 2004, London: NICE
Google Scholar
Higginson IJ, Finlay IG, Goodwin DM, Hood K, Edwards AG, Cook A, Douglas HR, Normand CE: Is there evidence that palliative care teams alter end-of-life experiences of patients and their caregivers?. J Pain Symptom Manage. 2003, 25: 150-168. 10.1016/S0885-3924(02)00599-7.
Article
PubMed
Google Scholar
Craig P, Dieppe P, Macintyre S, Michie S, Nazareth I, Petticrew M: Developing and evaluating complex interventions: the new Medical Research Council guidance. BMJ. 2008, 337: a1655-10.1136/bmj.a1655.
Article
PubMed
PubMed Central
Google Scholar
Zwarenstein M, Treweek S, Gagnier JJ, Altman DG, Tunis S, Haynes B, Oxman AD, Moher D, group C, Pragmatic Trials in Healthcare group: Improving the reporting of pragmatic trials: an extension of the CONSORT statement. BMJ. 2008, 337: a2390-10.1136/bmj.a2390.
Article
PubMed
PubMed Central
Google Scholar
von Elm E, Altman DG, Egger M, Pocock SJ, Gotzsche PC, Vandenbroucke JP, STROBE Initiative: The Strengthening the Reporting of Observational Studies in Epidemiology (STROBE) statement: guidelines for reporting observational studies. Lancet. 2007, 370: 1453-1457. 10.1016/S0140-6736(07)61602-X.
Article
PubMed
Google Scholar
National Institutes of Health: National Institutes of Health State-of-the-Science Conference Statement on Improving End-of-Life Care. 2004, USA: NIH Concensus Development Program
Google Scholar
Walshe C, Caress A, Chew-Graham C, Todd C: Implementation and impact of the Gold Standards Framework in community palliative care: a qualitative study of three primary care trusts. Palliat Med. 2008, 22: 736-743. 10.1177/0269216308094103.
Article
CAS
PubMed
Google Scholar
Higginson IJ, Evans CJ: What is the evidence that palliative care teams improve outcomes for cancer patients and their families?. Cancer J. 2010, 16: 423-435. 10.1097/PPO.0b013e3181f684e5.
Article
PubMed
Google Scholar
Gysels MH, Evans C, Higginson IJ: Patient, caregiver, health professional and researcher views and experiences of participating in research at the end of life: a critical interpretive synthesis of the literature. BMC Med Res Methodol. 2012, 12: 123-10.1186/1471-2288-12-123.
Article
PubMed
PubMed Central
Google Scholar
Evans CJ, Harding R, Higginson IJ, on behalf of MORECare: ‘Best practice’ in developing and evaluating palliative and end-of-life care services: a meta-synthesis of research methods for the MORECare project. Palliat Med. 2013, 10.1177/0269216312467489.
Google Scholar
Yardley L, Beyer N, Hauer K, McKee K, Ballinger C, Todd C: Recommendations for promoting the engagement of older people in activities to prevent falls. Qual Saf Health Care. 2007, 16: 230-234. 10.1136/qshc.2006.019802.
Article
CAS
PubMed
PubMed Central
Google Scholar
Gysels M, Evans CJ, Lewis P, Speck P, Benalia A, Preston NJ, Grande G, Short V, Owen-Jones E, Todd C, Higginson IJ, on behalf of MORECare: MORECare research methods guidance development: Recommendations for ethical issues in palliative and end-of-life care research. Palliat Med. In press
Preston NJ, Fayers P, Walters SJ, Pilling M, Grande G, Short V, Owen-Jones E, Evans CJ, Benalia A, Higginson IJ, Todd C, on behalf of MORECare: Recommendations for managing missing data, attrition and response shift in palliative and end of life care research: Part of the MORECare research methods guidance on statistical issues. Palliat Med. In press
Evans CJ, Benalia A, Preston NJ, Grande G, Gysels M, Short V, Daveson BA, Bausewein C, Todd C, Higginson IJ, on behalf of MORECare: The selection and use of outcome measures in palliative and end-of- life care research: the MORECare international consensus workshop. J Pain Symptom Manage. In press
Farquhar M, Preston NJ, Short V, Evans CJ, Walshe C, Grande G, Benalia H, Anscombe E, Higginson IJ, Todd C: MORECare research methods guidance development: Recommendations for using mixed methods to develop and evaluate complex interventions in palliative and end of life care [abstract]. Palliat Med. 2012, 26: 419.
Google Scholar
Preston NJ, Short V, Hollingworth W, McCrone P, Grande G, Evans CJ, Anscombe E, Benalia A, Higginson IJ, Todd C: MORECare research methods guidance development: Recommendations for health economic evaluation in palliative and end of life care research [abstract]. Palliat Med. 2012, 26: 541.
Article
Google Scholar
Perera R, Heneghan C, Yudkin P: Graphical method for depicting randomised trials of complex interventions. BMJ. 2007, 334: 127-129. 10.1136/bmj.39045.396817.68.
Article
PubMed
PubMed Central
Google Scholar
Koffman J, Morgan M, Edmonds P, Speck P, Higginson IJ: Vulnerability in palliative care research: findings from a qualitative study of black Caribbean and white British patients with advanced cancer. J Med Ethics. 2009, 35: 440-444. 10.1136/jme.2008.027839.
Article
CAS
PubMed
Google Scholar
Dumville JC, Torgerson DJ, Hewitt CE: Reporting attrition in randomised controlled trials. BMJ. 2006, 332: 969-971. 10.1136/bmj.332.7547.969.
Article
PubMed
PubMed Central
Google Scholar
Hewitt CE, Kumaravel B, Dumville JC, Torgerson DJ, Trial attrition study group: Assessing the impact of attrition in randomized controlled trials. J Clin Epidemiol. 2010, 63: 1264-1270. 10.1016/j.jclinepi.2010.01.010.
Article
PubMed
Google Scholar
Bausewein C, Simon ST, Benalia H, Downing J, Mwangi-Powell FN, Daveson BA, Harding R, Higginson IJ: Implementing patient reported outcome measures (PROMs) in palliative care–users’ cry for help. Health Qual Life Outcomes. 2011, 9: 27-10.1186/1477-7525-9-27.
Article
PubMed
PubMed Central
Google Scholar
Tang ST, McCorkle R: Appropriate time frames for data collection in quality of life research among cancer patients at the end of life. Qual Life Res. 2002, 11: 145-155. 10.1023/A:1015021531112.
Article
PubMed
Google Scholar
Mokkink LB, Terwee CB, Patrick DL, Alonso J, Stratford PW, Knol DL, Bouter LM, de Vet HC: The COSMIN study reached international consensus on taxonomy, terminology, and definitions of measurement properties for health-related patient-reported outcomes. J Clin Epidemiol. 2010, 63: 737-745. 10.1016/j.jclinepi.2010.02.006.
Article
PubMed
Google Scholar
Harding R, Simon ST, Benalia H, Downing J, Daveson BA, Higginson IJ, Bausewein C: The PRISMA Symposium 1: outcome tool use. Disharmony in European outcomes research for palliative and advanced disease care: too many tools in practice. J Pain Symptom Manage. 2011, 42: 493-500. 10.1016/j.jpainsymman.2011.06.008.
Article
PubMed
Google Scholar
Simon ST, Higginson IJ, Harding R, Daveson BA, Gysels M, Deliens L, Echteld MA, Radbruch L, Toscani F, Krzyzanowski DM, Costantini M, Downing J, Ferreira PL, Benalia A, Bausewein C, PRISMA: Enhancing patient-reported outcome measurement in research and practice of palliative and end-of-life care. Support Care Cancer. 2012, 20: 1573-1578. 10.1007/s00520-012-1436-5.
Article
PubMed
Google Scholar
Harvey S, Rowan K, Harrison D, Black N: Using clinical databases to evaluate healthcare interventions. Int J Technol Assess Health Care. 2010, 26: 86-94. 10.1017/S0266462309990572.
Article
PubMed
Google Scholar
Morrison SR, Penrod J, Cassel B, Caust-Ellenbogen M, Litke A, Spragens L, Meier DE, Palliative Care Leadership Centers’ Outcomes Group: Cost savings associated with US hospital palliative care consultation programs. Arch Int Med. 2008, 168: 1783-1790. 10.1001/archinte.168.16.1783.
Article
Google Scholar
Costantini M, Ottonelli S, Canavacci L, Pellegrini F, Beccaro M: The effectiveness of the Liverpool care pathway in improving end of life care for dying cancer patients in hospital. BMC Health Serv Res. 2011, 11: 13-10.1186/1472-6963-11-13.
Article
PubMed
PubMed Central
Google Scholar
Higginson IJ, Costantini M, Silber E, Burman R, Edmonds P: Evaluation of a new model of short-term palliative care for people severely affected with multiple sclerosis: a randomised fast-track trial to test timing of referral and how long the effect is maintained. Postgrad Med J. 2011, 87: 769-775. 10.1136/postgradmedj-2011-130290.
Article
PubMed
Google Scholar