Institute of Medicine and National Research Council. From cancer patient to cancer survivor: lost in transition. Washington, DC: The National Academies Press; 2006.
Google Scholar
Jefford M. Improving outcomes for cancer survivors in Australia. Cancer Forum. 2009;33(3):159–63.
Google Scholar
Hodgkinson K, Butow P, Hunt GE, Pendlebury S, Hobbs KM, Wain G. Breast cancer survivors’ supportive care needs 2–10 years after diagnosis. Support Care Cancer. 2007;15(5):515–23.
Article
PubMed
Google Scholar
Laidsaar-Powell R, Konings S, Rankin N, Koczwara B, Kemp E, Mazariego C, et al. A meta-review of qualitative research on adult cancer survivors: current strengths and evidence gaps. J Cancer Surviv. 2019;13(6):852–89.
Article
PubMed
Google Scholar
Mols F, Vingerhoets AJJM, Coebergh JW, van de Poll-Franse LV. Quality of life among long-term breast cancer survivors: a systematic review. Eur J Cancer. 2005;41(17):2613–9.
Article
PubMed
Google Scholar
Foster C, Wright D, Hill H, Hopkinson J, Roffe L. Psychosocial implications of living 5 years or more following a cancer diagnosis: a systematic review of the research evidence. Eur J Cancer Care. 2009;18(3):223–47.
Article
CAS
Google Scholar
Kent EE, Ambs A, Mitchell SA, Clauser SB, Smith AW, Hays RD. Health-related quality of life in older adult survivors of selected cancers: data from the SEER-MHOS linkage. Cancer. 2015;121(5):758–65.
Article
PubMed
Google Scholar
Baker F, Denniston M, Haffer SC, Liberatos P. Change in health-related quality of life of newly diagnosed cancer patients, cancer survivors, and controls. Cancer. 2009;115(13):3024–33.
Article
PubMed
Google Scholar
Schootman M, Aft R, Jeffe DB. An evaluation of lower-body functional limitations among long-term survivors of 11 different types of cancers. Cancer. 2009;115(22):5329–38.
Article
PubMed
Google Scholar
Hewitt M, Rowland JH, Yancik R. Cancer survivors in the United States: age, health, and disability. J Gerontol Ser A Biol Med Sci. 2003;58(1):M82–91.
Article
Google Scholar
LeMasters T, Madhavan S, Sambamoorthi U, Kurian S. A population-based study comparing HRQoL among breast, prostate, and colorectal cancer survivors to propensity score matched controls, by cancer type, and gender. Psychooncology. 2013;22(10):2270–82.
Article
PubMed
PubMed Central
Google Scholar
Glaser AW, Fraser LK, Corner J, Feltbower R, Morris EJ, Hartwell G, et al. Patient-reported outcomes of cancer survivors in England 1–5 years after diagnosis: a cross-sectional survey. BMJ Open. 2013;3(4):e002317.
Article
PubMed
PubMed Central
Google Scholar
Prince M, Patel V, Saxena S, Maj M, Maselko J, Phillips MR, et al. No health without mental health. Lancet. 2007;370(9590):859–77.
Article
PubMed
Google Scholar
Banks E, Redman S, Jorm L, Armstrong B, Bauman A, Beard J, et al. Cohort profile: the 45 and up study. Int J Epidemiol. 2008;37(5):941–7.
Article
PubMed
Google Scholar
Quality Assurance: Centre for Health Record Linkage (CHeReL); 2012. Available from: http://www.cherel.org.au/quality-assurance.
Australian Institute of Health and Welfare 2019. Cancer in Australia 2019. Cancer series no.119. Cat. no. CAN 123. Canberra: AIHW.
Stewart AL. Measuring functioning and well-being: the medical outcomes study approach. Durham and London: Duke University Press; 1992.
Haley SM, McHorney CA, Ware JE. Evaluation of the mos SF-36 physical functioning scale (PF-10): I. Unidimensionality and reproducibility of the Rasch item scale. J Clin Epidemiol. 1994;47(6):671–84.
Article
CAS
PubMed
Google Scholar
Stewart A, Kamberg CJ. Physical functioning measures. In: Stewart A, Ware JE, editors. Measuring functioning and well-being: the medical outcomes study approach. Durham: Duke University Press; 1992.
Google Scholar
Kessler RC, Andrews G, Colpe LJ, Hiripi E, Mroczek DK, Normand SL, et al. Short screening scales to monitor population prevalences and trends in non-specific psychological distress. Psychol Med. 2002;32(6):959–76.
Article
CAS
PubMed
Google Scholar
Andrews G, Slade T. Interpreting scores on the Kessler Psychological Distress Scale (K10). Aust N Z J Public Health. 2001;25(6):494–7.
Article
CAS
PubMed
Google Scholar
Banks E, Byles JE, Gibson RE, Rodgers B, Latz IK, Robinson IA, et al. Is psychological distress in people living with cancer related to the fact of diagnosis, current treatment or level of disability? Findings from a large Australian study. Med J Aust. 2010;193(5 Suppl):S62–7.
PubMed
Google Scholar
Syrowatka A, Motulsky A, Kurteva S, Hanley JA, Dixon WG, Meguerditchian AN, et al. Predictors of distress in female breast cancer survivors: a systematic review. Breast Cancer Res Treat. 2017;165(2):229–45.
Article
PubMed
PubMed Central
Google Scholar
Boyes AW, Girgis A, D’Este C, Zucca AC. Flourishing or floundering? Prevalence and correlates of anxiety and depression among a population-based sample of adult cancer survivors 6 months after diagnosis. J Affect Disord. 2011;135(1):184–92.
Article
PubMed
Google Scholar
Boyes AW, Girgis A, Zucca AC, Lecathelinais C. Anxiety and depression among long-term survivors of cancer in Australia: results of a population-based survey. Med J Aust. 2009;190(S7):S94–S8.
Article
PubMed
Google Scholar
Brown JC, Harhay MO, Harhay MN. Patient-reported versus objectively-measured physical function and mortality risk among cancer survivors. J Geriatr Oncol. 2016;7(2):108–15.
Article
PubMed
PubMed Central
Google Scholar
Eakin EG, Youlden DR, Baade PD, Lawler SP, Reeves MM, Heyworth JS, et al. Health status of long-term cancer survivors: results from an Australian population-based sample. Cancer Epidemiol Biomarkers Prev. 2006;15(10):1969.
Article
PubMed
Google Scholar
Elliott J, Fallows A, Staetsky L, Smith PWF, Foster CL, Maher EJ, et al. The health and well-being of cancer survivors in the UK: findings from a population-based survey. Br J Cancer. 2011;105(1):S11–20.
Article
PubMed
PubMed Central
Google Scholar
Garman KS, Pieper CF, Seo P, Cohen HJ. Function in elderly cancer survivors depends on comorbidities. J Gerontol Ser A. 2003;58(12):M1119–M24.
Article
Google Scholar
Götze H, Taubenheim S, Dietz A, Lordick F, Mehnert A. Comorbid conditions and health-related quality of life in long-term cancer survivors—associations with demographic and medical characteristics. J Cancer Surviv. 2018;12(5):712–20.
Article
PubMed
Google Scholar
Heins MJ, Korevaar JC, Hopman PEPC, Donker GA, Schellevis FG, Rijken MPM. Health-related quality of life and health care use in cancer survivors compared with patients with chronic diseases. Cancer. 2016;122(6):962–70.
Article
PubMed
Google Scholar
Hoffman KE, McCarthy EP, Recklitis CJ, Ng AK. Psychological distress in long-term survivors of adult-onset cancer: results from a national survey. Arch Intern Med. 2009;169(14):1274–81.
Article
PubMed
Google Scholar
Jefford M, Ward AC, Lisy K, Lacey K, Emery JD, Glaser AW, et al. Patient-reported outcomes in cancer survivors: a population-wide cross-sectional study. Support Care Cancer. 2017;25(10):3171–9.
Article
PubMed
Google Scholar
Keating NL, Nørredam M, Landrum MB, Huskamp HA, Meara E. Physical and mental health status of older long-term cancer survivors. J Am Geriatr Soc. 2005;53(12):2145–52.
Article
PubMed
Google Scholar
Kim KH, Cho YY, Shin DW, Lee JH, Ko Y-J, Park SM. Comparison of physical and mental health status between cancer survivors and the general population: a Korean population-based survey (KNHANES II-IV). Support Care Cancer. 2013;21(12):3471–81.
Article
PubMed
Google Scholar
Lazovich D, Robien K, Cutler G, Virnig B, Sweeney C. Quality of life in a prospective cohort of elderly women with and without cancer. Cancer. 2009;115(S18):4283–97.
Article
PubMed
Google Scholar
Leach CR, Bellizzi KM, Hurria A, Reeve BB. Is it my cancer or am i just getting older?: impact of cancer on age-related health conditions of older cancer survivors. Cancer. 2016;122(12):1946–53.
Article
PubMed
Google Scholar
Mols F, Coebergh JWW, van de Poll-Franse LV. Health-related quality of life and health care utilisation among older long-term cancer survivors: a population-based study. Eur J Cancer. 2007;43(15):2211–21.
Article
PubMed
Google Scholar
Ness KK, Wall MM, Oakes JM, Robison LL, Gurney JG. Physical performance limitations and participation restrictions among cancer survivors: a population-based study. Ann Epidemiol. 2006;16(3):197–205.
Article
PubMed
Google Scholar
Ng HS, Roder D, Koczwara B, Vitry A. Comorbidity, physical and mental health among cancer patients and survivors: an Australian population-based study. Asia Pac J Clin Oncol. 2018;14(2):e181–e92.
Article
PubMed
Google Scholar
Schroevers M, Ranchor AV, Sanderman R. Adjustment to cancer in the 8 years following diagnosis: a longitudinal study comparing cancer survivors with healthy individuals. Soc Sci Med. 2006;63(3):598–610.
Article
PubMed
Google Scholar
Sweeney C, Schmitz KH, Lazovich D, Virnig BA, Wallace RB, Folsom AR. Functional limitations in elderly female cancer survivors. J Natl Cancer Inst. 2006;98(8):521–9.
Article
PubMed
Google Scholar
Weaver KE, Forsythe LP, Reeve BB, Alfano CM, Rodriguez JL, Sabatino SA, et al. Mental and physical health–related quality of life among U.S. cancer survivors: population estimates from the 2010 National Health Interview Survey. Cancer Epidemiol Biomarkers Prev. 2012;21(11):2108.
Article
PubMed
PubMed Central
Google Scholar
Wikman A, Djärv T, Johar A, Lagergren P. Health-related quality of life does not differ between short-term, long-term and very long-term cancer survivors in the Swedish general population. Psycho-Oncology. 2013;22(6):1369–74.
Article
PubMed
Google Scholar
Zhao G, Li C, Li J, Balluz LS. Physical activity, psychological distress, and receipt of mental healthcare services among cancer survivors. J Cancer Surviv. 2013;7(1):131–9.
Article
PubMed
Google Scholar
Zhao G, Okoro CA, Li J, White A, Dhingra S, Li C. Current depression among adult cancer survivors: findings from the 2010 Behavioral Risk Factor Surveillance System. Cancer Epidemiol. 2014;38(6):757–64.
Article
PubMed
Google Scholar
Alibhai SM, Leach M, Kermalli H, Gupta V, Kowgier ME, Tomlinson GA, et al. The impact of acute myeloid leukemia and its treatment on quality of life and functional status in older adults. Crit Rev Oncol Hematol. 2007;64(1):19–30.
Article
PubMed
Google Scholar
Anastasiadis AG, Davis AR, Sawczuk IS, Fleming M, Perelman MA, Burchardt M, et al. Quality of life aspects in kidney cancer patients: data from a national registry. Support Care Cancer. 2003;11(11):700–6.
Article
PubMed
Google Scholar
Andrykowski MA, Bishop MM, Hahn EA, Cella DF, Beaumont JL, Brady MJ, et al. Long-term health-related quality of life, growth, and spiritual well-being after hematopoietic stem-cell transplantation. J Clin Oncol. 2005;23(3):599–608.
Article
PubMed
Google Scholar
Beisland C, Beisland E, Hjelle KM, Bostad L, Hjermstad MJ, Aarstad AKH, et al. Health-related quality of life in long-term survivors after renal cancer treatment. Scand J Urol. 2014;48(1):52–64.
Article
PubMed
Google Scholar
Bellizzi KM, Rowland JH, Arora NK, Hamilton AS, Miller MF, Aziz NM. Physical activity and quality of life in adult survivors of non-Hodgkin’s lymphoma. J Clin Oncol. 2009;27(6):960.
Article
PubMed
PubMed Central
Google Scholar
Beutel ME, Fischbeck S, Binder H, Blettner M, Brähler E, Emrich K, et al. Depression, anxiety and quality of life in long-term survivors of malignant melanoma: a register-based cohort study. PLoS One. 2015;10(1):e0116440. https://doi.org/10.1371/journal.pone.0116440.
Blaes AH, Ma L, Zhang Y, Peterson BA. Quality of life appears similar between survivors of indolent and aggressive non-Hodgkin lymphoma. Leuk Lymphoma. 2011;52(11):2105–10.
Article
PubMed
PubMed Central
Google Scholar
Bloom JR, Stewart SL, Chang S, Banks PJ. Then and now: quality of life of young breast cancer survivors. Psychooncology. 2004;13(3):147–60.
Article
PubMed
Google Scholar
Brown JC, Lin LL, Segal S, Chu CS, Haggerty AE, Ko EM, et al. Physical activity, daily walking, and lower limb lymphedema associate with physical function among uterine cancer survivors. Support Care Cancer. 2014;22(11):3017–25.
Article
PubMed
PubMed Central
Google Scholar
Caravati-Jouvenceaux A, Launoy G, Klein D, Henry-Amar M, Abeilard E, Danzon A, et al. Health-related quality of life among long-term survivors of colorectal cancer: a population-based study. Oncologist. 2011;16(11):1626–36.
Article
PubMed
PubMed Central
Google Scholar
Chambers SK, Meng X, Youl P, Aitken J, Dunn J, Baade P. A five-year prospective study of quality of life after colorectal cancer. Qual Life Res. 2012;21(9):1551–64.
Article
PubMed
Google Scholar
Clark PE, Schover LR, Uzzo RG, Hafez KS, Rybicki LA, Novick AC. Quality of life and psychological adaptation after surgical treatment for localized renal cell carcinoma: impact of the amount of remaining renal tissue. Urology. 2001;57(2):252–6.
Article
CAS
PubMed
Google Scholar
DiSipio T, Hayes S, Newman B, Janda M. Health-related quality of life 18 months after breast cancer: comparison with the general population of Queensland, Australia. Support Care Cancer. 2008;16(10):1141–50.
Article
PubMed
Google Scholar
Djärv T, Lagergren J, Blazeby JM, Lagergren P. Long-term health-related quality of life following surgery for oesophageal cancer. Br J Surg. 2008;95(9):1121–6.
Article
PubMed
Google Scholar
Downing A, Morris EJ, Richards M, Corner J, Wright P, Sebag-Montefiore D, et al. Health-related quality of life after colorectal cancer in England: a patient-reported outcomes study of individuals 12 to 36 months after diagnosis. J Clin Oncol. 2015;33(6):616–24.
Article
PubMed
Google Scholar
Egberts J-H, Schniewind B, Bestmann B, Schafmayer C, Egberts F, Faendrich F, et al. Impact of the site of anastomosis after oncologic esophagectomy on quality of life—a prospective, longitudinal outcome study. Ann Surg Oncol. 2008;15(2):566–75.
Article
PubMed
Google Scholar
Ferrandina G, Petrillo M, Mantegna G, Fuoco G, Terzano S, Venditti L, et al. Evaluation of quality of life and emotional distress in endometrial cancer patients: a 2-year prospective, longitudinal study. Gynecol Oncol. 2014;133(3):518–25.
Article
PubMed
Google Scholar
Ficarra V, Novella G, Sarti A, Novara G, Galfano A, Cavalleri S, et al. Psycho-social well-being and general health status after surgical treatment for localized renal cell carcinoma. Int Urol Nephrol. 2002;34(4):441–6.
Article
PubMed
Google Scholar
Galbraith ME, Arechiga A, Ramirez J, Pedro LW. Prostate cancer survivors’ and partners’ self-reports of health-related quality of life, treatment symptoms, and marital satisfaction 2.5-5.5 years after treatment. Oncol Nurs Forum. 2005;32(2):E30–41.
Article
PubMed
Google Scholar
Ganz PA, Desmond KA, Leedham B, Rowland JH, Meyerowitz BE, Belin TR. Quality of life in long-term, disease-free survivors of breast cancer: a follow-up study. J Natl Cancer Inst. 2002;94(1):39–49.
Article
PubMed
Google Scholar
Gjorup CA, Groenvold M, Hendel HW, Dahlstroem K, Drzewiecki KT, Klausen TW, et al. Health-related quality of life in melanoma patients: impact of melanoma-related limb lymphoedema. Eur J Cancer. 2017;85:122–32.
Article
PubMed
Google Scholar
Goswami S, Mongelli M, Peipert BJ, Helenowski I, Yount SE, Sturgeon C. Benchmarking health-related quality of life in thyroid cancer versus other cancers and United States normative data. Surgery. 2018;164(5):986–92.
Article
PubMed
Google Scholar
Goswami S, Peipert BJ, Mongelli MN, Kurumety SK, Helenowski IB, Yount SE, et al. Clinical factors associated with worse quality-of-life scores in United States thyroid cancer survivors. Surgery. 2019;166(1):69–74.
Article
PubMed
Google Scholar
Gulbrandsen N, Hjermstad MJ, Wisløff F, Group NMS. Interpretation of quality of life scores in multiple myeloma by comparison with a reference population and assessment of the clinical importance of score differences. Eur J Haematol. 2004;72(3):172–80.
Article
PubMed
Google Scholar
Hallas CN, Patel N, Oo A, Jackson M, Murphy P, Drakeley MJ, et al. Five-year survival following oesophageal cancer resection: psychosocial functioning and quality of life. Psychol Health Med. 2001;6(1):85–94.
Article
Google Scholar
Hammer SM, Brown JC, Segal S, Chu CS, Schmitz KH. Cancer-related impairments influence physical activity in uterine cancer survivors. Med Sci Sports Exerc. 2014;46(12):2195–201.
Article
PubMed
PubMed Central
Google Scholar
Harju E, Rantanen A, Helminen M, Kaunonen M, Isotalo T, Åstedt-Kurki P. Health-related quality of life in patients with prostate cancer and their spouses: results from a longitudinal study. Eur J Oncol Nurs. 2018;37:51–5.
Article
PubMed
Google Scholar
Helgeson VS, Tomich PL. Surviving cancer: a comparison of 5-year disease-free breast cancer survivors with healthy women. Psychooncology. 2005;14(4):307–17.
Article
PubMed
Google Scholar
Hellstadius Y, Lagergren J, Zylstra J, Gossage J, Davies A, Hultman CM, et al. A longitudinal assessment of psychological distress after oesophageal cancer surgery. Acta Oncol. 2017;56(5):746–52.
Article
PubMed
Google Scholar
Holterhues C, Cornish D, van de Poll-Franse LV, Krekels G, Koedijk F, Kuijpers D, et al. Impact of melanoma on patients’ lives among 562 survivors: a Dutch population-based study. Arch Dermatol. 2011;147(2):177–85.
Article
PubMed
Google Scholar
Holzner B, Kemmler G, Kopp M, Nguyen-Van-Tam D, Sperner-Unterweger B, Greil R. Quality of life of patients with chronic lymphocytic leukemia: results of a longitudinal investigation over 1 yr. Eur J Haematol. 2004;72(6):381–9.
Article
PubMed
Google Scholar
Høyer M, Johansson B, Nordin K, Bergkvist L, Ahlgren J, Lidin-Lindqvist A, et al. Health-related quality of life among women with breast cancer–a population-based study. Acta Oncol. 2011;50(7):1015–26.
Article
PubMed
Google Scholar
Hsu T, Ennis M, Hood N, Graham M, Goodwin PJ. Quality of life in long-term breast cancer survivors. J Clin Oncol. 2013;31(28):3540–8.
Article
PubMed
Google Scholar
Hu L-Y, Ku F-C, Wang Y-P, Shen C-C, Hu Y-W, Yeh C-M, et al. Anxiety and depressive disorders among patients with esophageal cancer in Taiwan: a nationwide population-based study. Support Care Cancer. 2015;23(3):733–40.
Article
PubMed
Google Scholar
Husson O, Haak HR, Buffart LM, Nieuwlaat W-A, Oranje WA, Mols F, et al. Health-related quality of life and disease specific symptoms in long-term thyroid cancer survivors: a study from the population-based PROFILES registry. Acta Oncol. 2013;52(2):249–58.
Article
PubMed
Google Scholar
Jensen RE, Arora NK, Bellizzi KM, Rowland JH, Hamilton AS, Aziz NM, et al. Health-related quality of life among survivors of aggressive non-Hodgkin lymphoma. Cancer. 2013;119(3):672–80.
Article
PubMed
Google Scholar
Jordan K, Proskorovsky I, Lewis P, Ishak J, Payne K, Lordan N, et al. Effect of general symptom level, specific adverse events, treatment patterns, and patient characteristics on health-related quality of life in patients with multiple myeloma: results of a European, multicenter cohort study. Support Care Cancer. 2014;22(2):417–26.
Article
PubMed
Google Scholar
Kerleau C, Guizard A-V, Daubisse-Marliac L, Heutte N, Mercier M, Grosclaude P, et al. Long-term quality of life among localised prostate cancer survivors: QALIPRO population-based study. Eur J Cancer. 2016;63:143–53.
Article
PubMed
Google Scholar
Kim SB, Williams SB, Cheng S-C, Sanda MG, Wagner AA. Evaluation of patient-reported quality-of-life outcomes after renal surgery. Urology. 2012;79(6):1268–73.
Article
PubMed
Google Scholar
Lagergren P, Avery KNL, Hughes R, Barham CP, Alderson D, Falk SJ, et al. Health-related quality of life among patients cured by surgery for esophageal cancer. Cancer. 2007;110(3):686–93.
Article
PubMed
Google Scholar
Lee JI, Kim SH, Tan AH, Kim HK, Jang HW, Hur KY, et al. Decreased health-related quality of life in disease-free survivors of differentiated thyroid cancer in Korea. Health Qual Life Outcomes. 2010;8(1):101.
Article
PubMed
PubMed Central
Google Scholar
Leung J, Pachana NA, McLaughlin D. Social support and health-related quality of life in women with breast cancer: a longitudinal study. Psycho-oncology. 2014;23(9):1014–20.
Article
PubMed
Google Scholar
Li M, Wang L. The associations of psychological stress with depressive and anxiety symptoms among Chinese bladder and renal cancer patients: the mediating role of resilience. PLoS One. 2016;11(4):e0154729. https://doi.org/10.1371/journal.pone.0154729.
Lin LL, Brown JC, Segal S, Schmitz KH. Quality of life, body mass index, and physical activity among uterine cancer patients. Int J Gynecol Cancer. 2014;24(6):1027.
Article
PubMed
PubMed Central
Google Scholar
Mehnert A, Lehmann C, Graefen M, Huland H, Koch U. Depression, anxiety, post-traumatic stress disorder and health-related quality of life and its association with social support in ambulatory prostate cancer patients. Eur J Cancer Care. 2010;19(6):736–45.
Article
CAS
Google Scholar
Michael YL, Kawachi I, Berkman LF, Holmes MD, Colditz GA. The persistent impact of breast carcinoma on functional health status: prospective evidence from the Nurses’ Health Study. Cancer. 2000;89(11):2176–86.
Article
CAS
PubMed
Google Scholar
Mols F, Aaronson NK, Vingerhoets AJ, Coebergh JWW, Vreugdenhil G, Lybeert ML, et al. Quality of life among long-term non-Hodgkin lymphoma survivors: a population-based study. Cancer. 2007;109(8):1659–67.
Article
PubMed
Google Scholar
Mols F, Oerlemans S, Vos AH, Koster A, Verelst S, Sonneveld P, et al. Health-related quality of life and disease-specific complaints among multiple myeloma patients up to 10 yr after diagnosis: results from a population-based study using the PROFILES registry. Eur J Haematol. 2012;89(4):311–9.
Article
PubMed
Google Scholar
Mols F, Schoormans D, Smit JWA, Netea-Maier RT, Links TP, van der Graaf WTA, et al. Age-related differences in health-related quality of life among thyroid cancer survivors compared with a normative sample: results from the PROFILES registry. Head Neck. 2018;40(10):2235–45.
Article
PubMed
Google Scholar
Mols F, van de Poll-Franse LV, Vingerhoets AJJM, Hendrikx A, Aaronson NK, Houterman S, et al. Long-term quality of life among Dutch prostate cancer survivors. Cancer. 2006;107(9):2186–96.
Article
PubMed
Google Scholar
Oberoi D, White V, Seymour J, Prince HM, Harrison S, Jefford M, et al. The course of anxiety, depression and unmet needs in survivors of diffuse large B cell lymphoma and multiple myeloma in the early survivorship period. J Cancer Surviv. 2017;11(3):329–38.
Article
PubMed
Google Scholar
Ostroff JS, Krebs P, Coups EJ, Burkhalter JE, Feinstein MB, Steingart RM, et al. Health-related quality of life among early-stage, non-small cell, lung cancer survivors. Lung Cancer. 2011;71(1):103–8.
Article
PubMed
Google Scholar
Palesh O, Aldridge-Gerry A, Bugos K, Pickham D, Chen JJ, Greco R, et al. Health behaviors and needs of melanoma survivors. Support Care Cancer. 2014;22(11):2973–80.
Article
PubMed
Google Scholar
Peuckmann V, Ekholm O, Rasmussen NK, Møller S, Groenvold M, Christiansen P, et al. Health-related quality of life in long-term breast cancer survivors: nationwide survey in Denmark. Breast Cancer Res Treat. 2007;104(1):39.
Article
PubMed
Google Scholar
Rauma V, Sintonen H, Räsänen JV, Salo JA, Ilonen IK. Long-term lung cancer survivors have permanently decreased quality of life after surgery. Clin Lung Cancer. 2015;16(1):40–5.
Article
PubMed
Google Scholar
Reimer J, Esser J, Fleiss A, Hessel A, Anastassiou G, Krausz M, et al. Quality of life in patients with malignant choroidal melanoma after radiotherapy. Graefes Arch Clin Exp Ophthalmol. 2003;241(5):371–7.
Article
PubMed
Google Scholar
Sanda MG, Dunn RL, Michalski J, Sandler HM, Northouse L, Hembroff L, et al. Quality of life and satisfaction with outcome among prostate-cancer survivors. N Engl J Med. 2008;358(12):1250–61.
Article
CAS
PubMed
Google Scholar
Sarna L, Padilla G, Holmes C, Tashkin D, Brecht ML, Evangelista L. Quality of life of long-term survivors of non–small-cell lung cancer. J Clin Oncol. 2002;20(13):2920–9.
Article
PubMed
Google Scholar
Schlesinger-Raab A, Schubert-Fritschle G, Hein R, Stolz W, Volkenandt M, Hölzel D, et al. Quality of life in localised malignant melanoma. Ann Oncol. 2010;21(12):2428–35.
Article
CAS
PubMed
Google Scholar
Smith SK, Crespi CM, Petersen L, Zimmerman S, Ganz PA. The impact of cancer and quality of life for post-treatment non-Hodgkin lymphoma survivors. Psycho-oncology. 2010;19(12):1259–67.
Article
PubMed
PubMed Central
Google Scholar
Smith SK, Mayer DK, Zimmerman S, Williams CS, Benecha H, Ganz PA, et al. Quality of life among long-term survivors of non-Hodgkin lymphoma: a follow-up study. J Clin Oncol. 2013;31(2):272.
Article
PubMed
Google Scholar
Smith SK, Zimmerman S, Williams CS, Zebrack BJ. Health status and quality of life among non-Hodgkin lymphoma survivors. Cancer. 2009;115(14):3312–23.
Article
PubMed
Google Scholar
Syrjala KL, Langer SL, Abrams JR, Storer B, Sanders JE, Flowers ME, et al. Recovery and long-term function after hematopoietic cell transplantation for leukemia or lymphoma. Jama. 2004;291(19):2335–43.
Article
CAS
PubMed
Google Scholar
Syrjala KL, Langer SL, Abrams JR, Storer BE, Martin PJ. Late effects of hematopoietic cell transplantation among 10-year adult survivors compared with case-matched controls. J Clin Oncol. 2005;23(27):6596–606.
Article
PubMed
Google Scholar
Tan LGL, Nan L, Thumboo J, Sundram F, Tan LKS. Health-related quality of life in thyroid cancer survivors. Laryngoscope. 2007;117(3):507–10.
Article
PubMed
Google Scholar
Teoh AYB, Yan Chiu PW, Wong TCL, Liu SYW, Hung Wong SK, Ng EKW. Functional performance and quality of life in patients with squamous esophageal carcinoma receiving surgery or chemoradiation: results from a randomized trial. Ann Surg. 2011;253(1):1–5.
Article
PubMed
Google Scholar
Thong MS, Mols F, Lemmens VE, Creemers G-J, Slooter GD, van de Poll-Franse LV. Impact of chemotherapy on health status and symptom burden of colon cancer survivors: a population-based study. Eur J Cancer. 2011;47(12):1798–807.
Article
PubMed
Google Scholar
Tomich PL, Helgeson VS. Five years later: a cross-sectional comparison of breast cancer survivors with healthy women. Psychooncology. 2002;11(2):154–69.
Article
PubMed
Google Scholar
Trentham-Dietz A, Sprague BL, Klein R, Klein BE, Cruickshanks KJ, Fryback DG, et al. Health-related quality of life before and after a breast cancer diagnosis. Breast Cancer Res Treat. 2008;109(2):379–87.
Article
PubMed
Google Scholar
Van der Poel M, Oerlemans S, Schouten H, van de Poll-Franse L. Elderly multiple myeloma patients experience less deterioration in health-related quality of life than younger patients compared to a normative population: a study from the population-based PROFILES registry. Ann Hematol. 2015;94(4):651–61.
Article
PubMed
Google Scholar
Verhaar S, Vissers PA, Maas H, van de Poll-Franse LV, van Erning FN, Mols F. Treatment-related differences in health related quality of life and disease specific symptoms among colon cancer survivors: results from the population-based PROFILES registry. Eur J Cancer. 2015;51(10):1263–73.
Article
PubMed
Google Scholar
Waldmann A, Nolte S, Pritzkuleit R, Breitbart EW, Katalinic A. Different aspects of self-reported quality of life in 450 German melanoma survivors. Cancers. 2011;3(2):2316–32.
Article
PubMed
PubMed Central
Google Scholar
Yang P, Cheville AL, Wampfler JA, Garces YI, Jatoi A, Clark MM, et al. Quality of life and symptom burden among long-term lung cancer survivors. J Thorac Oncol. 2012;7(1):64–70.
Article
PubMed
PubMed Central
Google Scholar
Zhang Y, Joshy G, Glass K, Banks E. Physical functional limitations and psychological distress in people with and without colorectal cancer: findings from a large Australian study. J Cancer Survivorship. 2020;14(6):894-905.
Deimling GT, Kahana B, Bowman KF, Schaefer ML. Cancer survivorship and psychological distress in later life. Psychooncology. 2002;11(6):479–94.
Osoba D. Health-related quality of life and cancer clinical trials. Ther Adv Med Oncol. 2011;3(2):57–71.
Butow P, Girgis A, Goldstein D, Eisenbruch M, Schofield P, Jefford M, et al. Unmet needs in Chinese, Greek and Arabic speaking cancer patients in Australia. Psychooncology. 2009;17(9):S7.
Google Scholar
Rothman KJ, Gallacher JE, Hatch EE. Why representativeness should be avoided. Int J Epidemiol. 2013;42(4):1012–4.
Article
PubMed
PubMed Central
Google Scholar
Mealing NM, Banks E, Jorm LR, Steel DG, Clements MS, Rogers KD. Investigation of relative risk estimates from studies of the same population with contrasting response rates and designs. BMC Med Res Methodol. 2010;10:26.
Article
PubMed
PubMed Central
Google Scholar
Nekhlyudov L, Mollica MA, Jacobsen PB, Mayer DK, Shulman LN, Geiger AM. Developing a quality of cancer survivorship care framework: implications for clinical care, research, and policy. J Natl Cancer Inst. 2019;111(11):1120–30.
Article
PubMed
PubMed Central
Google Scholar
Butow P, Price MA, Shaw JM, Turner J, Clayton JM, Grimison P, et al. Clinical pathway for the screening, assessment and management of anxiety and depression in adult cancer patients: Australian guidelines. Psychooncology. 2015;24(9):987–1001.
Article
PubMed
Google Scholar
Jefford M, Koczwara B, Emery J, Thornton-Benko E, Vardy J. The important role of general practice in the care of cancer survivors. Australian Journal for General Practitioners. 2020;49:288-92.
Edmondson AJ, Birtwistle JC, Catto JWF, Twiddy M. The patients’ experience of a bladder cancer diagnosis: a systematic review of the qualitative evidence. J Cancer Surviv. 2017;11(4):453–61.
Antoni MH. Psychosocial intervention effects on adaptation, disease course and biobehavioral processes in cancer. Brain Behav Immun. 2013;30(Suppl): 88–98.
Mollica MA, Mayer DK, Oeffinger KC, Kim Y, Buckenmaier SS, Sivaram S, et al. Follow-up care for breast and colorectal cancer across the globe: survey findings from 27 countries. JCO Glob Oncol. 2020;6:1394–411.